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North Carolina Health News

North Carolina Health News

News. Policy. Trends. North Carolina.

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Read our articles published in partnership with The Charlotte Ledger

Tag: spinal muscular atrophy

shows a young woman with an infant on her lap and another young child in a wheelchair with her. BOth childrem have the genetic disease SMA.
Posted inChildren's Health

Lawmakers Add Illnesses to Newborn Screening Testing

by Jared Weber May 31, 2018May 31, 2018

By Jared Weber Of Jennifer Lee’s five children, three — Jocelyn, Nathan and Kirra — were born with spinal muscular atrophy (SMA), a debilitating genetic disease. Both Nathan and Jocelyn each went years without treatment after being diagnosed with the disease, which saps children of their motor function. Nathan, 5, has limited movement of his […]

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