Advocates for Medically Fragile Kids NC

A crowd stands behind a podium with a "Health care emergency tour" sign. A woman holding a medically fragile child speaks at the podium

Raising and speaking out for medically fragile kids

September 26, 2019 by Yen Duong

Raising and speaking out for medically fragile kids - North Carolina Health News

Parents of medically fragile children have a lot on their plates, but some feel pulled toward advocacy work on behalf of their kids.

By Yen Duong “Oh sorry, that’s grape juice,” Stacy Staggs apologized when her pigtailed 5-year-old daughter, Sara Bean, wiped her small, sticky hands on the back of a visitor’s shirt. Sara was taking a snack break from playing with her twin sister, Emma, who was messing around on an electronic tablet. In many ways, the […]

shows a little boy hugging a little girl who is attached to a ventilator.

New Greensboro Clinic Aims to be Medical Home for Seriously Ill Children

December 15, 2017 by Mark Tosczak

New Greensboro Clinic Aims to be Medical Home for Seriously Ill Children - North Carolina Health News

The new service will fill the gap left by the closure of KidsPath earlier this month. That service worked with several dozen "medically fragile" children.

By Mark Tosczak Cone Health is launching a new pediatric palliative care clinic to meet the needs of medically fragile children in Guilford County. Most of the clinic’s services will be provided by Cone staff at Cone facilities or in patients’ homes, but that care will be coordinated with some services provided by Hospice and […]

shows a little baby with an oxygen tube on his nose playing with a developmental toy.

Medicaid Covers All That? It’s The Backstop Of America’s Ailing Health System

September 27, 2017 by Kaiser Health News

Medicaid Covers All That? It’s The Backstop Of America’s Ailing Health System - North Carolina Health News

Much of the discussion on Capitol Hill has been around Medicaid, which has been around since 1966. The program covers more than you think.

By Phil Galewitz Kaiser Health News When high levels of lead were discovered in the public water system in Flint, Mich., in 2015, Medicaid stepped in to help thousands of children get tested for poisoning and receive care. When disabled children need to get to doctors’ appointments — either across town or hundreds of miles […]

NC Senators Vote to Move ACA Repeal Bill Forward

July 26, 2017 by Rose Hoban

NC Senators Vote to Move ACA Repeal Bill Forward - North Carolina Health News

Both Burr and Tillis voted “aye” on the “motion to proceed,” which allows a piece of legislation to come up for consideration, debate and amendments. Then the real voting began.

By Rose Hoban Senate Republicans took a dramatic step toward fulfilling their promises to repeal former President Barack Obama’s signature health care law, the Affordable Care Act, on Tuesday by approving a motion to begin debate on an overhaul. By a vote of 50-50, with Vice President Mike Pence casting the tie-breaking vote, the repeal […]

Disability Advocates See Existential Threat from Senate Health Bill

June 28, 2017 by Rose Hoban

Disability Advocates See Existential Threat from Senate Health Bill - North Carolina Health News

Moms with “medically fragile” kids say they’re frightened about the health care bill being considered in the U.S. Senate.

By Rose Hoban Natalie Taylor’s pregnancy was going pretty well. The Elon University professor was feeling good and getting excited about having her first baby with her husband Eric Hart. But at 18 weeks, Taylor’s water broke, leaving her son with too little amniotic fluid for his lungs to develop properly. Taylor managed to hold […]

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