Lawmakers Add Illnesses to Newborn Screening Testing
By Jared Weber Of Jennifer Lee’s five children, three — Jocelyn, Nathan and Kirra — were born with spinal muscular atrophy (SMA), a debilitating genetic disease. Both Nathan and Jocelyn each went years without treatment after being diagnosed with the disease, which saps children of their motor function. Nathan, 5, has limited movement of his … Continue reading Lawmakers Add Illnesses to Newborn Screening Testing
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